Autism Community Mourns Passing of Dr. Ted Carr
Pioneer Psychologist Transformed Understanding and Treatment of Autism Behaviors
Submit your thoughts, messages and memories of Dr. Carr here.
The autism community lost a great leader this weekend, Dr. Edward Carr, who was killed by a drunk driver the afternoon of June 20, 2009. Dr. Carr, the Leading Professor in the Department of Psychology at the State University of New York at Stony Brook, was a top advisor to the Autism Society. We are deeply saddened by the loss of our friend and colleague and his wife, Ilene Wasserman, who was also killed in the crash, and we send our thoughts and prayers to their family.
Dr. Carr was recognized internationally for his research on new treatments for autism and related disabilities. He co-developed Functional Behavioral Assessment and Positive Behavior Support, a strategy for dealing with learning and behavior issues endorsed by the Individuals with Disabilities Education Act (IDEA). Dr. Carr wrote numerous articles on autism treatment and authored the best-selling book, Communication-Based Intervention for Problem Behavior (Paul H. Brookes, 1994). He has received numerous awards, including the Applied Research Award in Behavior Analysis (American Psychological Association, 2001) and the Distinguished Research Award for Career Achievement (ARC, 1999).
Dr. Carr was a strong supporter, valued contributor and beloved colleague at the Autism Society. As a member of the Autism Society’s Panel of Professional Advisors, he was a frequent contributor to the Autism Advocate, most recently co-editing an issue on ABA therapy, which was one of his many areas of expertise. With Drs. Martha Herbert and Brenda Smith-Myles, Dr. Carr developed the Autism Society’s Treatment Guided Research Initiative and was the main inspiration for the "Quality of Life" objectives the Society uses to develop and evaluate its programs. A frequent presenter at the Autism Society National Conference, Dr. Carr was scheduled to moderate this year’s keynote panel on “The Future of Autism” on July 23. The panel will continue to be held in his honor.
“Ted was passionately committed to improving the quality of life for people with autism and their families,” said Lee Grossman, President and CEO of the Autism Society. “Those of us who were privileged to work closely with him will miss his insights, his humor, his deep compassion and advocacy for people affected by autism. We will miss him greatly but we will ensure his legacy lives on.”
“Dr. Ted Carr was a pioneer in the field of positive behavior supports and autism spectrum disorders. His focus on enhancing quality of life and understanding of the systemic issues surrounding behaviors forced practitioners to think more broadly when designing interventions,” said Dr. Cathy Pratt, Chair of the Autism Society Board of Directors. “He was a gentle man and quiet innovator with a quick wit and amusing perspective. His work will truly live on and serve as an inspiration for generations to come.”
Dr. Carr is Past President of the Association for Positive Behavior Support. He is a Fellow of the American Psychological Association and the American Association on Intellectual and Developmental Disabilities.
Read more about Dr. Carr and his work.
In Dr. Carr's honor, the Autism Society has set up this Tribute page for colleagues, friends and admirers to post their thoughts and messages on Dr. Carr. Submit your thoughts, messages and memories here. This page will be shared with his family and colleagues.
APBS Tribute Page: http://www.apbs.org/tribute.html
Guest Book Signatures
Dena Gassner Monday, June 22, 2009
I can't begin to tell you all how sad this makes me. I only came to know Ted when the PSA and PPA met together for the first time and he sat near me on the panel. I found him funny, light and quietly charming. I am sad that like many, I had not had the good fortune to learn more about his fascinating work.
May angels surround Ted, his wife and his beloved son.
Dena Gassner
Ted's Graduate Students Stony Brook University Monday, June 22, 2009
Ted was a brillant man who dedicated his life to improving the lives of families of people with developmental disabilities. As his graduate students, we feel honored to have worked so closely with him and to learn how to think outside of the box, and continually question the status quo. We would like the autism community to know that we are dedicated to continuing Ted's cutting edge research that has such far reaching impact on families. We take comfort in knowing that so many people were touched by Ted's work and that as a community we can come together and celebrate the life of a great researcher, teacher, and man.
V. Mark Durand Monday, June 22, 2009
Ted was first my dissertation advisor in the early 1980s and later became a good friend. He was genuinely passionate about his work and would talk for hours on end about research. At the same time,he cared deeply about his family and recently shared how proud he was of his son Aaron who just started to work with people having behavioral challenges. He lived the life he espoused for people with disabilities - caring deeply about quality of life.
In his last email to me this past week, he gave me a quote to print about an article to be published in JPBI. This says it all - "I think we have to modify the broader context and that includes caregiver training, developing social supports, facilitating access to the community, and a host of other considerations that, collectively, give the person with disabilities a reason to wake up in the morning and participate meaningfully in life, a reason not to be irritable, hopeless, and angry."
I know I will need to remember his words in days to come.
Rob O'Neill Monday, June 22, 2009
I was very saddened to hear about the deaths of Ted and his wife. The field has lost a brilliant researcher and contributor, as well as a wonderful human being. Ted did amazing work, and he was also one of the funniest human beings I have ever known! My heart goes out to his son and family at this most difficult of times.
Rob O'Neill
Special Education
University of Utah
Salt Lake City, U
Gary LaVigna Monday, June 22, 2009
Ted was an inspiration and unparalleled in his understanding non-linear applied behavior analysis and the complex relationship between multiple variables and behavior. Among other things, he used this sophisticated understanding to help him understand the behaviors associated with autism... and to help the rest of us understand these behaviors better ourselves. The goal: helping people to be respected and to have a better quality of life. I will miss the beacon he provided to us all.
Phil Blevins Monday, June 22, 2009
I am shocked and so deeply saddened by Dr. Carr's death. Ted was a personal hero and my agency has relied on his views many times when confronting complicated situations that called for a logical, calm and behaviorally sound approach.
I hope that the autism community can share their memories and admiration at the national Conference in Chicago this July.
My thoughts and prayers are with his family.
-Phil Blevins, Carolina Autism, Charleston, SC
Gary LaVigna Monday, June 22, 2009
Ted was one of a kind. He, of all I know, had the most sophisticated understanding of non-linear ABA. He understood that certain medical and other conditions could be "setting events" for certain behavioral problems. His understanding of the complex interaction between multiple variables on behavior made him the perfect person to be working with you on this very important paper.
I'll look forward to its publication certain to see his brilliance reflected in it.
Gary
Bob and Lynn Koegel Tuesday, June 23, 2009
Ted Carr was one of the most caring and inspirational people we know and has been a close friend and colleague since the early 1970s when he worked (with Bob) as a post-doc at the old Camarillo State Hospital. Fortunately, partly due to Ted's work in those early years, children are no longer placed in mental hospitals. Ted's energy, brilliance and enthusiasm were used to genuinely help to change the world to be a better place. His sense of humor brightened and livened meetings, speeches, and get-togethers. Throughout his many major accomplishments, including being a (probably THE) major force in starting JPBI and APBS, his only motivations were to help improve the world. He never cared about increasing his fame or his wealth. His primary goals were to help people and to make the world a better place for individuals with disabilties to live. He did so with incredible humor, brilliance, scientific excellence (even perfection), and genuine caring. We cannot begin to say how much we miss Ted and his wife. This is such a needless tragedy. Thank heavens that the memories of Ted, his work and his family, are all truly happy ones. His life's work will continue changing the world for a very long time to come.
Bob and Lynn Koegel
Laurie Yankowitz Tuesday, June 23, 2009
I had the privilege of meeting Dr. Carr two years ago when he gave a presentation to families of individuals with Fragile X Syndrome with 2 of his graduate students. As a professional in the field of developmental disabilities and a doctoral student at Teacher's College in the intellectual disabilities/autism special education program, I had been very familiar with his published work, which is grounded in a deeply respectful regard for individuals for whom verbal communication is greatly impaired, and an inspiring integration of human insight and soundly articulated scholarly and scientific principles. I invited Dr. Carr and his students out to lunch after the presentation and found Dr. Carr to be very easy to be with - warm, down-to-earth, soft-spoken, and gracious. He had a great relationship with his students, for whom I ache for this tragic loss. I am proud to be part of a community that will honor his memory going forward with the work of supporting people with autism and other special needs to be understood and improve their quality of life through practices that hold promise for enhancing the time each of us has on this earth in relating to one another.
Cathy Pratt Tuesday, June 23, 2009
I remember the first time I heard Ted Carr speak. I was a graduate student and his focus on quality of life shifted my thinking forever. Through the years, Ted's work has continued to serve as an inspiration for many. He was humble, always learning, and always pursuing new ways of thinking. His death leaves a giant hole in the disability community and in the lives of many. I will miss you, Ted.
Kelly Miciek Tuesday, June 23, 2009
So sorry for the loss of 2 wonderful people,My prayes to the family.
Kathy Grant Tuesday, June 23, 2009
May your Memory be Eternal!
Barbara Becker-Cotrill Tuesday, June 23, 2009
I send my sincerest sympathy to Dr. Carr's son and family. The impact he had in the field of autism, behavior analysis and positive behavior support was monumental. His work changed the lives of families and individuals with developmental disbilities. He had, and will continue to have, a tremendous impact on professionals delivering services.
Barbara Becker-Cottrill, WV Autism Training Center
Peter Gerhardt Tuesday, June 23, 2009
This is truly a great loss. Ted was a gifted professor, a talented researcher, and an all around good guy. He will be missed.
Peter F. Gerhardt, Ed.D.
Diane Twachtman-Cullen Tuesday, June 23, 2009
I am so very saddened by the loss of this wonderful man and outstanding researcher. In many ways, his research helped to define my own professional path. I will miss his wonderful sense of humor; his keen insights; and his remarkable ability to understand the world from the perspective of those with autism. My heart goes out to his son, and my prayers are with Ted, his wife, Ilene, and their respective families. The autism community has lost one of its truly best and brightest stars.
With deepest sympathy,
Diane (Twachtman-Cullen)
Tammy McNair Tuesday, June 23, 2009
I wish to extend my sincere sympathy to Dr. Carr's son and family. His work will never be forgotten and will continue to provide a positive impact amongst those with developmental disabilities.
Tammy McNair
Let's B.A.N.
Missing Pieces Photography
Huntington, WV
Donn Posner Tuesday, June 23, 2009
I have not seen or talked with Ted in all these many years since I was one of his graduate students. Despite this I cannot convey how saddened I was to hear this terrible news. Like so many of his students and colleagues, I consider myself fortunate to have benefited from his wisdom, insight and above all his marvelous sense of humor. Although my work is no longer in the area of developmental disabilities, I continue to work in psychology and behavior change. As I reflect on my time with Ted it becomes clear just how much he taught me and how much his insights still inform my work today. The world has lost a great champion and I am saddened to think of all the students who will now not have the benefit of working with him. My thoughts and prayers go out to his family.
Shawn Fleming Tuesday, June 23, 2009
Ted was so brilliant he was able to make the most complicated issue understandable to anyone. He was so compassionate that it appeared that he committed his entire life to lifting up the capacity of society at large in an effort to treat one another with more dignity and respect. He was so personable and humble that he made everyone feel capable and welcomed. I am honored to have known him and had him significantly influence me on multiple levels. Realizing the thousands of people's lives that were transformed as a result of his influence makes the grief of his loss more profound. My prayers go out to his son and family.
Eilleen Kalman Tuesday, June 23, 2009
There may be nothing with greater positive impact on our students than FBAs and positive behavior support. The work of Dr. Carr will continue to help improve the lives of many, many people with autism and other disabilities. My heart goes out to his family at his loss and the loss of his wife. We have lost a great advocate and teacher.
Paul Dores Tuesday, June 23, 2009
I worked with Ted as my graduate advisor at Stony Brook in the late 1970's and early 1980's. Some of my best memories are of Ted and Buddy Newsom at the old Suffolk Child Development Center, sleeves rolled up, working with real kids in real classrooms. Ted was a kind and gentle man, dignified and respectful, but with a biting and dry wit. His approach to working with individual with behavior problems, not just students and professional colleagues, continues to inform my clinical practice. I will always remember Ted and his brown paper bad, his sandwich, his apple and his thermos...every day, every lunch, even on the day I defended my dissertation with him. My best to his family, friends and current students.
Paul Alan Dores, Ph.D., BCBA-D (all thanks to Ted!)
Dolly & Tim LaBelle Tuesday, June 23, 2009
To Dr & Mrs.Carr's son, I am so sorry and sad for you. I see that you are embarking on a new path to University this fall and should be such an exciting time for you. I do hope you will succeed in all your studies and know that your father was a great inspiration to a very special community. Your parents will always be present in all you do.
Whatever path you lead, may you be blessed each step of the way.
Kindest thoughts and prayers...the LaBelle's
Jody Binkoff Tuesday, June 23, 2009
To Ted's family: I am so very sorry to hear this heartbreaking news. The sadness keeps coming in waves, and it's hard to find the right words. I hope one day you can find comfort in knowing how many lives he made better, how his teaching and inspiration will continue to make lives better, and that his memory will live on in countless ways.
Although it's been a long time, I've thought of him and you over the years. I know that Ted continued to be the person he was when we met: funny, compassionate, kind, passionate about the work he loved, down-to-earth, and brilliant in his ability to generate new ways of thinking about old problems, and to integrate science and treatment such that each was the better for it. I can still see his smile and hear his laugh.
My heart aches for you, his son, extended family, his friends and colleagues and students, and the autism community. It's a tremendous loss.
I am thinking of you and will continue to keep Ted's memory alive.
Joanne Gerenser Tuesday, June 23, 2009
People with autism and developmental disabilities have lost a true champion. We have lost a brilliant researcher and teacher. I have lost someone I considered a friend. My heart goes out to his son and his family. To lose both your parents at such a young age is just unimaginable.
Sarah Trindade Tuesday, June 23, 2009
Today I looked at my blackberry to find an email from Stony Brook's Psychology department's Donna Hildenbrand to find out that my all time best professor during my undergraduate career, had died in a car accident. I immediately starting crying, holding my six-month old son. I had Dr. Carr as my professor at SB this past fall, while I was pregnant. He was an amazing, intelligent and an influential man. He was so understanding and caring. I had a flashback from my graduation ceremony this May 2009, and seeing him up on stage smiling, representing the graduating Psychology undergraduates of 2009. I pray for him, his wife and his only son. He contributed so much to psychology and Autism. May his work live on. Rest In Peace, you both will always be remembered. Thank you for all of your great contributions to making life easier for those who need it most.
Susannah Weinbaum Tuesday, June 23, 2009
Ted Carr's work in the area of behavior management was transformational for our family.
His lectures reflected his sense of humor as well as a strong regard and sense of caring for those with autism and their families. His death is a tremendous loss for all of us.
Mark Needleman Tuesday, June 23, 2009
I am shaken and in a state of disbelief at the loss of this beautiful, gentle and humorous man. I represented him and Ilene years ago and was instantly taken by his engaging personality and wit. I am deeply saddened as our community has suffered a great loss.
Eric DeGregoria Tuesday, June 23, 2009
I had Dr.Ted Carr as a professor for two straight semesters and he was such an awesome guy. He was not the kind of teacher that would just throw facts at you, he made it intersting and fun. I would always be interested in everything he had to say because he was full of life and would do anything to help someone that had an emotional problem. I cant even say all the great things about him because there are so many, but he is the best person i have ever met and will always be in my heart. All the things he taught were useful in the real world to work with kids that have autism. I am working with a child right now and i will continue to follow in Dr.Carrs footsteps so that i can make him proud. I just cant believe and i will never believe this happened. I love him and i will always be thinking about him forever. I wish the best to Aaron and his family for loosing the most two wonderful people.
Lee Stickle Tuesday, June 23, 2009
Truly a life lived in service to others, Dr. Carr exemplified "Education is not the filling of a pail, but the lighting of a fire." -Mahatma Gandhi
Jeff Sell Tuesday, June 23, 2009
Ted was such a dedicated and wonderful man. His passion was contagious and our families are much better off for his years of dedication to the autism community. He was a hero and will be missed! I will miss the late night email exchanges with him so much.
Nila Benito Tuesday, June 23, 2009
Ted Carr's compassion, understanding, and insight for individuals with autism and their families was inspirational and validating. His work and most importantly his kind heart and open mind made a big difference in the lives of my family. Thank you Ted, now and forever for all you've done to help elevate the imporatnce of the quality of life of people with autism and their families. You will be greatly missed!~
Kathy Gould Tuesday, June 23, 2009
I am sure the sadness and loss is hard to put into words for those who really knew Ted. I met him just once, read and admired his work, loved watching him present and tried to commit the concepts and values he inspired to what I do. I will be forever grateful that I got to see him last March, hear him speak and have him make me laugh out loud one more time. He will be missed.
Kathy Gould
Illinois
Kristen Ruthkowski Tuesday, June 23, 2009
When I think of Ted I think of someone who I always looked at with a lot of awe. He somehow could teach, humor, and bolster a person with just a few lines. I hope his family knows how many people he touched and that that is a legacy and will really make him live on forever.
Suzanne Taffet-Romano Tuesday, June 23, 2009
In my work doing curriculum and training in a school for children on the spectrum, I have frequently heard Ted Carr speak and have tried to follow the supremely humane vision he so eloquently laid out. May the senseless loss of Ted and Ilene serve only to strengthen all of our resolve to live up to their shining example. My prayers go out to their son for his unfathomable loss.
Megan Walisch Tuesday, June 23, 2009
I had Dr.Carr both semesters this past year at Stony Brook. I wasn't sure what I actually wanted to do in the field of Psychology until after I took his ABA/PBS class in Fall 08. I know now that I want to work with children with Autism and other mental disablities. He was an excellent professor and a great person. He always made the class laugh and was a very happy go lucky guy. I am just so happy that he was able to guide me in a path that I know im going to love. He is the reason for what I want to do and life and I am so truly greatful for it. He has touched so many live and he will truly be missed.
RIP Dr.Carr and thank you!
Mattew Federico Tuesday, June 23, 2009
there is not enough words in the dictionary to describe how amazing Professor Carr was.He will be greatly missed. I really still can't believe this happened and to a point still don't want to except it. My deepest sympathy goes out to his family. He did not deserve this.
Angela Cerina Tuesday, June 23, 2009
I have been to a few conferences on autism and Ted Carr was always an amazing speaker. His sense of humor was refreshing, yet he was such an impressive speaker.
As a parent with an older son with autism, I want to say how sorry I am for Ted's son to loose such a great man, and father. You must be very proud of your dad! Our deepest sympathy.
Angela Cerina
Paulette Britton Wednesday, June 24, 2009
This is such a huge loss, to the Carr family, to the autism community in the States and to the world. We are so so saddened by the death of this wonderful couple. We are grateful for all the work you have done on behalf of our children, to bring to them a better and hopeful future. Prayers to you all.
David Celiberti Wednesday, June 24, 2009
I first met Ted Carr over 20 years ago when I was a college senior at Stony Brook trying to enroll in a small seminar on autism. Without a doubt, my decision to pursue this career was a direct result of his class. He was an incredible professor, witty, intelligent, and had an uncanny ability to bring to life concepts and findings from published research.
This is a profound loss for our community. Although I know he had more to teach us, his legacy will continue through his students, his brilliant writings, and the transformational impact he has had on how we approach challenging behaviors. My thoughts and prayers go out to his son and family, as well as his students.
David Weiner Wednesday, June 24, 2009
In the late 70's, I was an undergraduate student in a course taught by Prof. Carr at Stony Brook, and remembered him as the most pleasant, caring and thoughtful faculty members that I ever knew.
This is a tragic loss for the Autism Community and Stony Brook, and extend my sympathy to the families of Dr's. Carr and Wasserman.
Andrea Lambe Wednesday, June 24, 2009
I just wanted to send my condolences to Dr. Carr's family and friends and would like to share a quick story.
My son Joey was spiraling downward into his autism world at about 4 years old. I felt extremely helpless and desperate to help him and was recommended to contact Dr. Carr for suggestions. I put in a phonecall to his office and low and behold he answered his phone! I don't remember our exact conversation, but what I do remember is how caring and compassionate he was and how he truly wanted to help our family. He gave me wonderful suggestions and made me feel so much better. As a parent of a child with autism, you never forget the people who help and guide you through this difficult journey and I will never forget that phone conversation.
Ali Albronda Wednesday, June 24, 2009
It was a privilege to have Dr. Carr as a professor. The passion he had for his work was inspirational. Beyond being a complete genius he also was so funny and down to earth. I always looked forward to going to his lectures. The world has suffered a great loss. My condolences to his wonderful family.
Danny Chan Wednesday, June 24, 2009
Dr.Carr was a great professor and inspired many students to look beyond textbooks and lectures and actually learn. It was an honor to have him as a professor and I am deeply saddened by what happened to him. It's sad that someone who gave so much to the field of psychology and Autism research was taken away so quickly. Farewell.
Meme Hieneman Wednesday, June 24, 2009
Ted Carr was my colleague, and my friend. The thing I loved most about Ted was his unbridled honesty. While many of us are subdued behind a façade of propriety for fear we may offend someone, Ted spoke openly. If Ted had a question, he asked it. Through his inquiry, he came to know people better and extended his knowledge to become the preeminent researcher we all knew.
If Ted had an opinion, he stated it... regardless of its popularity (and sometimes possibly to deliberately provoke his more reserved colleagues). He entertained us with his stories and off-the-wall comments and challenged us to think differently. Through such risk-taking, he opened up real communication and continually moved our field forward.
If Ted was impressed or pleased, he said so. He was incredibly gracious with his praise and encouragement. He was effusive in his compliments when my first book came out, and was a constant source of support throughout a very difficult time in my life. Ted truly cared about people and held tight to his vision and values. The lessons he taught will remain with us always.
Carole Londeree Wednesday, June 24, 2009
My heart is heavy with sadness, this is deeply sorrowful news. Thank you Ted for the kindness, love, and compassion you gave to so many. Your work and your model of a friend, colleague, and a genuine and compassionate human being will be forever etched on our hearts and minds. My prayers and heartfelt sympathy go out to Ted and Ilene's son and families. They will be greatly missed but not forgotten.
Anu Prabhala Wednesday, June 24, 2009
I am in shock. I just recently corresponded with Dr. Carr for an endorsement for a book and he responded every so promptly, as always. As a leading scholar in the field, Dr. Carr wrote at least one major book for AAIDD on Positive Behavior Support. Although I have not had a chance to meet Dr. Carr personally, I have heard so much about him and have read his books.I am deeply shocked by this untimely death and I send my prayers to his family.
Anu Prabhala
AAIDD, Washington, DC
Fredda Brown Wednesday, June 24, 2009
It took a few days to feel something other than numb--so that I could only now write down a few thoughts. I find it too difficult to even try to capture in words what I felt about Ted. I can, however, share a fond memory about the two times that he was a "discussant" at panels in which I presented. After the few panel presentations, it was Ted's turn to wrap up, find some message in what it all meant. When he proceeded with his usual casual, yet delicately crafted words, all I thought was--- "Why did we bother with our presentations?! Why didn't we just give Ted the whole time?!" Ted's ability to express his important messages was, and likely always will be, unsurpassed. His skill at delivering these messages with warmth and humor made learning from him joyful. And there was so much to learn from him. I will always feel great appreciation at his generosity with his time he was always willing to give feedback, share knowledge, and be a supportive colleague and frien!
d.
I will miss him.
Fredda Brown
Scott Yarbrough Wednesday, June 24, 2009
It was my good fortune to spend time as a graduate student in Ted's lab during the 1990's. The time that I most looked forward to each week was when we held lab meetings, which were infused with reinforcing snacks, hilarious anecdotes, and wide ranging discussions that demonstrated Ted's scholarly breadth of interest. Ted was a conceptual thinker who never let the micro-analytic details that are commonly emphasized in a behavior analytic approach to obscure the overall social systems variables that permit the daily use of ABA techniques by families and educators. I see the impact of his work every day that I work with educators in schools and with families of children with disabilities. My thoughts are with Aaron and those who were closest to Ted and Ilene during this difficult time.
Scott Yarbrough, Ph.D.
San Francisco
Emile Mulder Wednesday, June 24, 2009
I was one of Ted's graduate students, and will now continue my studies without him.
My fondest memories of Ted were our conversations about politics and psychology and the lectures that he taught. Ted approached all of his discussions and lectures with a childlike enthusiasm that was contagious, and while his classes always managed to end early, it could be really hard to get out of a conversation. This could be frustrating at times and I often had to rush to catch trains, or make my appointments. Eventually I learned techniques for getting out of these conversations that involved packing up my things while we talked and slowly backing away. I could have told him that I had to go, and this did work as well, but the main reason that conversations lasted so long is that there would always be something new and interesting to draw me back in and make me want to see what came next.
Ted's classes were the same as his regular conversations except that he somehow took that same energy and projected it to the entire crowd. It was clear that despite his many years teaching the same undergraduate course, he still loved it, loved the topic, loved performing, loved the adoration of the undergrads and loved the fact that this is how he was making a difference. He not only pioneered new methods of assessing and treating developmental disabilities, but he managed to spread his interest in the field, encouraging the next generation to follow in his footsteps or make their own.
In his research, Ted had a good eye for the big picture. He had a great sense for what the field was lacking, where it needed to go and how to get it there. One of these directions, which I was lucky to be a part of, was an attempt to merge the medical and behavioral fields of autism. We sought to show that pain and other symptoms of illness were the keys to understanding the effect of medical treatments on improvements in autism symptoms. Along these lines, he reached out to medical researchers and doctors to try to learn all he could from them. He went against the mainstream in our field by trying to give every theory and treatment a fair chance, and believed that it was our duty as researchers to test popular treatments and provide evidence for or against them. He was convinced that a lack of understanding of medical problems, mood, temperament and other setting events served as a barrier to successful behavioral treatments, and that by working to remove these barriers, we could greatly improve autism outcomes.
What brought me to this lab and what made me never regret being a part of it was Ted's idealism. He had faults like any mentor, but at the end of the day, his main interest in all of his work was helping people. He wanted to work toward a world in which people provided adequate care and support for those who need it most; a world in which a developmental disability did not rob a person of their rights to be treated with respect, dignity and humanity. He died too soon to see it fulfilled, but he passed on that vision to myself and many others. For this, I remember fondly and with love, my mentor, Ted Carr.
Nancy Freeman Thursday, June 25, 2009
Dr Carr's impact on the field of autism and developmental disabilities has been profound, crossing international borders. Ted Carr's contributions have influenced the research and practice of a generation of psychologists and behaviour analysts, inspiring us to serve children and families better.
Nancy Freeman
Surrey Place Centre
Canada
Peter McGill Thursday, June 25, 2009
We were shocked and saddened to hear of the death of Ted Carr and his wife. Ted was a great friend and supporter to the Tizard Centre. In the late 1990s he was on the Faculty of our Summer School and gave a wonderful keynote talk. My own first contact with him was several years before that when he acted as a reviewer of a paper I had submitted to an American journal. He (unusually) signed his review and (when my paper was rejected) was extremely supportive when I contacted him for advice. Over the years since he has been extremely positive about the work we have done in the UK, often citing it in the inclusive way that was typical of both the man and his work. Only a few months ago he wrote a reference for me for a promotion application and sent me a congratulatory email when I was successful. Ted's work has been enormously influential in the UK. We have run a course on Positive Behaviour Support for the last 20 years and Ted's work has never been off the reference list. His book on communication-based approaches is a core text on that and other of our programmes. The wonderful thing about his work was the way in which it combined science and values. His recent work on rapport was a very good example of this, attempting to define a values-based concept in a way that lent itself to scientific examination. I will very much miss having him at the end of an email connection but his memory will certainly live on through his work for many, many years.
Peter McGill, Jim Mansell, Julie Beadle-Brown and colleagues at the Tizard Centre, University of Kent, UK
Christine Reeve Thursday, June 25, 2009
It has taken me a few days to be able to collect my thoughts to even know what to say about the loss of Ted and Ilene. I was fortunate enough to be one of Ted's graduate students in the late 80s and early 90s and the time I spent working with him had a significant impact on who I am and what I do today. Ted's ability to see the bigger picture in the ABA field, which often focuses on the details, was inspiring. I can't imagine what the field of ABA or autism would be or will be like without him. Long Island was never my favorite place to live in the years that I was there, but there was never any question in my mind that working with Ted was where I wanted to be. In those years I realized his foresight and intelligence within the field, but it's only been in pursuing my own career that I realize how truly gifted he was to see so far into the future. Ted's research was always about 10 years ahead of the field. My thoughts are with Aaron and Ted and Ilene's families at this time. Please know that Ted had a profound impact on everyone around him and his memory will live on in our work and our lives.
Marti White Sunday, June 28, 2009
Ted was a wonderful teacher and inspiration to me when I was an undergraduate at Stony Brook. His knowledge of Autism and his guidance as a professor guided me to the field of psychology. He will truly be missed.
Aaron Carr Tuesday, June 30, 2009
Thank you for all of the kind words directed towards my father. He is still here with us today. Just take a look at how much the quality of life has improved for individuals with Autism. Now that's proof.
Brenda Smith Myles Tuesday, June 30, 2009
Ted was a wonderful friend. I was collaborating with Martha Herbert and him on a project that allowed us to have weekly phone conversations. I was always in awe of Ted's ability to see things in way that few people did. His ideas helped me to put things into perspective countless times. He challenged tradition and urged us to look beyond the status quo. His passion for individuals on the spectrum, their families, and community was immeasurable and he was absolutely devoted to ensuring that quality of life was attainable for all.
I was most impressed by his humility. Ted did not seem to know that he was a gift to the autism community. He was ahead of his time -- working to promote dignity, access, and support for individuals with autism spectrum disorders before most of us realized that these were issues. The autism community has lost a great advocate, mentor and friend. I am grateful that Ted laid a wonderful foundation for us to build upon.
Brenda Smith Myles
Rochelle Carr Burns Tuesday, June 30, 2009
The numerous emails remembering Ted and Ilene in such positive ways say a lot about both of them, and also about all of you. There is so much good in the world.
We thank you for your messages; we thank you for being there for us; we thank you for being you.
As Aaron so eloquently stated in his eulogy to his parents, we are giving our energy to what is positive. Thus, we do not know who among those who heard Aaron's inspiring eulogy, or who among you who read this, how the butterfly effect of Ilene's and Ted's efforts will so touch your life that you will be part of a process for someone's emotional uplifting, or an end to autism.
To families struggling with the effects of autism, know there will be a cure and a prevention because the organizations you have created, like the Autism Society of America, will not rest until this is accomplished.
To Ilene's fellow psychologists who have seen her patients' care will continue; to Ted's grad students who not only will carry on his work, but who have encircled Aaron with scholarship and love; to the psychology department at SUNY Stony Brook whose intelligence and warmth gave Ted an added reason to love his work, we give our love back to you.
To politicians whom you may know, or who are reading this, now that we in the United States and Canada seem to own parts of auto companies, perhaps our energies need to be directed not to more laws that come into effect after the fact, but to a system of prevention. A thought: a device in every car that does not allow the engine to work if it detects a minimum level of alcohol anywhere in the car.
To all of you who continue to be there for us, know we are there for you, to the best of our abilities, in all your efforts. Together, we will make this a better and better world.
There is too much goodness for it to be otherwise.
With love and blessings,
Rochelle (Carr) Burns, PhD -- Ted's sister, Ilene's sister-in-law -- for Aaron and all of us on both sides of the border.
Dr.Nancy Sylvanie Wednesday, July 1, 2009
My prayers are with your family. You are an icon in our field.We will study harder and may we all cherish your wonderful past work.
Donna Ferullo Wednesday, July 1, 2009
I worked with Ted regularly over the past year on projects at the Autism Society of America. I knew him less as the eminent scholar and researcher he was, more as the hard worker and always eager contributor, committed to improving the lives of people with autism throughout the lifespan. His vast knowledge of autism was clear, his passion to move the field forward in constructive ways was resolute, and his incisive wit was a laser strike through any regime that could block progress towards that goal. That drive was gently fueled by kindness and concern for people living with autism and their families and Ted's desire and talent to make it better. He was warm, he was welcoming, he had the generous, active spirit of a helper, and he was delightful. He could also break up a conference call into gales of laughter in seconds. I send my deepest sympathy to Aaron, Rochelle and Allan as well as to Ilene's father and family. That beautiful funeral reflected the Ted that I know and the heartbreak that we share. I wish you peace and beautiful memories.
Christine Kirch Thursday, July 2, 2009
My deepest sympathy goes out to Dr.Carr's family. My seven year old son has severe autism and his passing is a great loss to people afflicted with this terriable disability. People like Dr. Carr are irreplacable. May he rest in peace. He left the world a better place because he was in it.
Barbara Van Sant Thursday, July 2, 2009
Dr. Carr was an amazing person--a true pioneer. Back 20+ years ago I attended a training he led--and it has shaped my work from that time forward.
Blessings.
Angela Hernandez Thursday, July 2, 2009
May Dr.Carr and his wife be in our prayers and may his work continue to have an impact on students, and families around the world. My heart goes out to Aaron, may God bless you.
Susan Kohman Friday, July 3, 2009
I am so sorry for your loss. I did not know Ted, but he sounds like a wonderful man. I have a son with Asperger's and hearing about the loss of a man with so much passion for helping people on the Autism spectrum is very disheartening, especially knowing he was killed by a drunk driver. My thoughts and prayers are with your family.
Tafesse Tucho Friday, July 3, 2009
As parents of our son Eegan T.Tucho with Autism we express our sincere condoluns to the family and friends of Dr. Edward Carr. Dr. Crr's passing is a loss to us all and the children who would benefit from his great works and generosity.
Stormi Beutler Friday, July 3, 2009
I am very saddened by Dr. Carr's passing. I came to know him through his books. May god be with his family and friends at this very difficult time.
Joan Hanna Saturday, July 4, 2009
so sad to hear of the tragic loss of Dr Carr's life along with his wife. On a personal note years ago my son with autism was in crisis.I tracted Dr Carr down for advice. He so graciously talked with me on the phone. He gave me sound advice and a sense of comfort during a very difficult time. My condolences to the family and friend's of the Carrs
Jennifer Wilkinson Saturday, July 4, 2009
I'm so sorry to hear about this man and his wife. I didn't know them, but they did something great in this world to help all of God's children. My son is high-functioning autistic, and I believe that all the angels in Heaven were there to bring them home because of the special things that they did for others. May our Heavenly Father bless the family with peace and comfort.
Linda Walder Fiddle Saturday, July 4, 2009
On behalf of the Board of Trustees and Advisory Boards of The Daniel Jordan Fiddle Foundation, I wish to express our profound sorrow on the untimely and tragic passing of our dear friend and colleague, Dr. Ted Carr and his wife Dr. Ilene Wasserman. Ted was a pioneer in advancing knowledge and understanding about ASD and those who confront this challenge. He understood that people with ASD are PEOPLE FIRST and that their health and wellness is based upon the satisfaction and joy they derive from their pursuits and relationships---just like everyone else! I will greatly miss this funny, intelligent and wise friend and I will carry his memory with me forever. To Ted and Ilene's family, colleagues and friends please know that their lives were cherished by many and their good works will endure. With heartfelt condolences, Linda Walder Fiddle, Founder and Executive Director of The Daniel Jordan Fiddle Foundation
Gloria Anaya Saturday, July 4, 2009
My deepest sympathy to these great people`s family.Its never easy to see a loved one part. May you find comfort in Jesus Christ. I know Dr. Carr will be watching from heaven, and will see after our special needs sons/daughters. Thank you so much for all you`ve done. RIP
Travis Thompson Sunday, July 12, 2009
Ted was a long time friend and valued colleague. His death is an immeasurable loss to me personally and to our field. See the memorial piece at my website http://travis-thompson.net/
Darlene Magito McLaughlin Thursday, July 23, 2009
To my friend, mentor, and colleague, Ted Carr:
You have touched me in so many ways, both personally and professionally over the past 18 years. I'm so happy that I had the opportunity to thank you in person during our recent lunch at APBS in Jacksonville. You have always helped me to organize my thoughts into constructs, to relate my experiences to behavioral theory, and to embrace the challenges that I face in my clinical work as "interesting empirical questions." You have broadened by view of applied behavior analysis, and taught me that it's OK to tackle topics such as mood, rapport, and happiness (as long as they can be operationally defined!), even in the face of resounding criticism. You have given me the courage to challenge "the establishment" and to set the bar higher, both for myself and for those with whom I work. While I will miss our spirited discussions here on Earth, I have to believe that you are answering to a higher calling now in Heaven. There's still much to be done, but you've given us a great start, and we're committed to carrying on in your honor.
You will forever live on in the lives and works of those that you have touched. And in the end, you were right...you can influence only a few people directly in this lifetime, and many more through research and dissemination of your ideas.
I am so proud and honored to have been one of your chosen few. I will miss you, and Long Island will miss you.
Toni Silva Friday, July 24, 2009
What a terrible tragedy and huge loss for the autism community. My husband and I first met Dr. Carr at the annual ASA conference in Orlando, July 2008. Dr. Carr was the first time that my husband attended anything with me about Autism. It was a special time for us, learning how to help our son be successful. Dr. Carr had a wonderful way of presenting in a way that was both informative and humorous, although it was a serious topic. It seems unfair that such a giving person would leave this world so early. Our prayers go out to his family.
Kristin Houck Wednesday, July 29, 2009
I am so sorry for the loss of this wonderful man on the behalf of the entire autism community. My thoughts and prayers go out to the family, and I thank them for their support through the years to Ted, which I'm sure truly helped him on his own quest to help change so many lives for the better! The autism community will be forever grateful for his dedication, and I know he will be smiling down at the continuing progress we make in the coming years.